Post new topic Reply to topic  [ 15 posts ] 
 FINDING A FIBRO-FRIENDLY DOCTOR 
Author Message
Site Admin
User avatar

Joined: Tue Sep 28, 2004 10:18 pm
Posts: 8029
Location: Toronto, Canada
Post FINDING A FIBRO-FRIENDLY DOCTOR
For those who are still searching for a good doctor who will treat their FMS correctly, there are lists of known FMS Friendly doctors available in several locations to assist you. Below I will share the sources I know of, if anyone else knows of others, please add them to the list. To my knowledge, these lists are all provided free of charge.

Several of these also include tips, information and "interview" information to help you evaluate doctors to find the right one for you!

Also, if you HAVE a good doctor who treats your FMS, please take a moment to add them to the listings, that is how we learn which doctors help us! (Please note that we cannot personally vouch for any of these doctors. Use your best judgment and ask around.)


ME/CFS & Fibromyalgia Good Doctor List
http://www.co-cure.org/Good-Doc.htm

Fibromyalgia (FMS) and Chronic Myofascial Pain (CMP) Information for Patients and Supporters
Care Provider List
http://www.sover.net/~devstar/provider.htm

Doctor Finder Registry
http://members.tripod.com/~EAT_2/DoctorFinder.html

Med Help
http://www.med-help.net/Fibromyalgia-Doctors.html

Doctors For Pain
http://www.doctorsforpain.com/physician ... erica.html

Rheumatology.org
http://www.rheumatology.org/directory/geo.asp

Bureau of Primary Health Care
http://ask.hrsa.gov/pc
Website provides referrals to health care providers across the country.
Rockville, Maryland 20857 (888) ASK-HRSA

Arthritis Associations
http://www.arthritis.org. The Arthritis Foundation sponsors fibromyalgia support groups in many places and offers an online directory of their groups at their website:

The CFIDS Association of America
http://www.cfids.org./about-cfids/choosing-a-doctor.asp
(They maintain a state-by-state list of CFS support groups in the United States. (Contact them at 800/442-3437 or through their website: http://www.cfids.org.) Local chapters of the foundation provide physician referrals. For other lists of FM support groups, see the previous section.

The FMS Community website
http://fmscommunity.org/findingadoctor.htm

Devin Starlanyl’s site
http://www.sover.net/~devstar/provider.htm

_________________
Always consult a qualified professional before acting on any information or advice you find on this site or anywhere on the Internet.

Image

Some will sell their dreams for small desires
Or lose the race to rats
Get caught in ticking traps
And start to dream of somewhere
To relax their restless flight


Sat Sep 29, 2007 6:50 pm
Profile
FT Favourite
User avatar

Joined: Tue Aug 22, 2006 7:33 pm
Posts: 458
Location: Austin, TX
Post 
Hi all,

I'll post my docs that treat my fms for those in or near the Grand Strand area of Myrtle Beach, SC.

My rheumatologist is Dr. Conaway with Carolina Health Specialists
My orthopeadic surgeon is Dr. Edward Mikol with Carolina Orthopaedic
My chiropractor is Dr. Michael Edgerton with Edgerton Chiropratic and Wellness Center

These doctors not only treat my fms but also understand the disease as well. They are very easy to talk to and ask my opinions on what is working and what isnt.

Belle

_________________
Live your life as each day were your last! Love, admire and show compassion. Lest you be the one who needs it!

Check me out at: http://www.myspace.com/sthrnbelle1201 or on facebook, I'm Kelly Batton Cozzone


Sun Sep 30, 2007 2:18 pm
Profile
FT Favourite

Joined: Sat Sep 22, 2007 11:54 pm
Posts: 399
Post 
Dr. Terrence Trong moved from our small town 5 years ago to ok city. univerity hospital to teach. still has a practice there. excelent understanding, patint and careing.


Sun Sep 30, 2007 2:46 pm
Profile
FT Phenom
User avatar

Joined: Mon Sep 10, 2007 2:02 pm
Posts: 172
Location: Madison Co. IA
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
Thanks for this info. I intend to look into the referred Dr. in my area.I am on an upswing right now,but still in a worse condition than I had been a couple yrs ago. Maybe she could add some info I have not gotten from others.

_________________
My photos can be seen at http://www.flickr.com/photos/aplseed/


Sun Dec 09, 2007 2:14 am
Profile
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
aplseed,

I really have nothing to add. I totally lucked out. My Asthma doctor kept saying "I think your anemic", " I think you have an underactive Thyroid". He gave me the name of two new doctors both sisters and Russian.

I made an appointment with one of them, and was I lucky. She did a head to toe assessement. A full blood work up that yes showed Iron Deficiency Anemia, and Hypothyroidism, which we know know is Hashimoto's Thyroiditis.

She has been better to me than the supposed Number 2 Fibro Doctor in this country. He did nothing for me. She has done so much. She takes her time, listens to me, and my opinions, asks me questions, and listens to the answers. She also has other Fibromyalgia patients which makes me more confident in her. I dropped #2 awhile ago.

I think sometimes you just get lucky. And I'm so glad I'm one of them. :yahoo


Sun Dec 09, 2007 3:28 am
Site Admin
User avatar

Joined: Tue Sep 28, 2004 10:18 pm
Posts: 8029
Location: Toronto, Canada
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
Just a quick note: FT doesn't endorse the doctors on any of these lists. The names have been compiled by third-parties.

We provide this information to members who have nowhere else to turn, hoping the lists will be a good starting point in your search. You can also try PMing other members who live in your area for their personal experience with doctors.

We hope you find a good fibro-friendly doctor from whatever source. :wave

_________________
Always consult a qualified professional before acting on any information or advice you find on this site or anywhere on the Internet.

Image

Some will sell their dreams for small desires
Or lose the race to rats
Get caught in ticking traps
And start to dream of somewhere
To relax their restless flight


Sun Dec 09, 2007 10:31 am
Profile
FT Phenom
User avatar

Joined: Mon Sep 10, 2007 2:02 pm
Posts: 172
Location: Madison Co. IA
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
I recently changed insurance ,and notice that DR.Mary Radia in the Des Moines area is on the provider list. Since she is listed as fibro friendly I am going to give her a try. I have never had a Dr. I felt truelly believed or knew alot about fibro.

_________________
My photos can be seen at http://www.flickr.com/photos/aplseed/


Wed Apr 02, 2008 4:19 pm
Profile
FT 500 Club
User avatar

Joined: Wed Jan 02, 2008 12:26 pm
Posts: 799
Location: Iowa
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
HI alseed I'm also from Iowa and have not been able to find a fibro friendly doctor would you please pass your doctor info on to me.

_________________
Image
"God grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference"


Wed Apr 02, 2008 5:54 pm
Profile
Site Admin
User avatar

Joined: Tue Sep 28, 2004 10:18 pm
Posts: 8029
Location: Toronto, Canada
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
Hey Bobbie,

Just in case aplseed misses your request, you can also try to click Image to send her a PM and get the info you need *8*

:luck

soul

_________________
Always consult a qualified professional before acting on any information or advice you find on this site or anywhere on the Internet.

Image

Some will sell their dreams for small desires
Or lose the race to rats
Get caught in ticking traps
And start to dream of somewhere
To relax their restless flight


Thu Apr 03, 2008 6:10 pm
Profile
Fibromite
User avatar

Joined: Sat Feb 11, 2012 6:35 pm
Posts: 8
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
Anybody have a fibro-friendly doc in Nebraska??? I'm desperate!

_________________
I can do all things through Christ who strengthens me.


Sun Feb 12, 2012 3:37 pm
Profile
Fibromite

Joined: Mon Apr 30, 2012 7:49 am
Posts: 1
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
Do not use this Austin TX rheumatologist for fibromyalgia. She does not believe in it . Do a BUNCH of searching for some one else. Her name is Dr. Tina Bunch.


Mon Jun 18, 2012 1:15 am
Profile
FT Phenom
User avatar

Joined: Fri Feb 01, 2013 5:35 am
Posts: 178
Location: Austin, Texas
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
My rhuematologist in Austin, TX is great, Dr. Stephanie Booth. I recommend her highly. She treats my fibro and arthritis. Been seeing her for 4 years. She's off 38th street. You have to pay for parking though.

_________________
Happiness dance into my life with love and laughter.


Sun Jun 09, 2013 1:59 am
Profile
FT Favourite

Joined: Mon Jun 17, 2013 9:51 pm
Posts: 329
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
Dr. Charles Lapp and Dr. Laura Black in Charlotte, NC are both great. They have a practice called the Hunter-Hopkins Center and they only treat FM and CFS.

They have very specialized knowledge and can do exercise or tilt table testing right in the office. They will not be dismissive of your symptoms, they have lots of great suggestions, and they are both really kind people.

They have a number of patients who travel from other states to see them. Feel free to PM me if you have any questions.

JF


Wed Sep 18, 2013 10:01 pm
Profile
FibroTalk Fan

Joined: Sun Nov 03, 2013 2:46 pm
Posts: 16
Post Re: FINDING A FIBRO-FRIENDLY DOCTOR
FINALLY found a good doc in Austin. Dr. John S. Kim and Dr. Nomita Pothuluri at Victory Medical Clinic in South Austin.


Fri Aug 29, 2014 2:17 pm
Profile
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 15 posts ] 

Who is online

Users browsing this forum: No registered users and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
Powered by phpBB® Forum Software © phpBB Group
Revolution Magazine phpBB3 template by Brian Gardner Media, LLC